Monday, January 28, 2013

A long over due update

WOW, it has been forever since I have updated this blog, which I guess given that this blog is about the trials and struggles of Collin that it's a good thing it's been a while!

School is in full swing and I pleased to announce that this year Collin LOVES school. He has an amazing teacher Mrs. Dietrich who makes Collin feel so good about himself. She is kind and understanding and has made a point to make sure she knows all about Collin and his NF and other diagnosis. I can't tell you how AWESOME it is too have Collin love school. Last year he hated it and cried every day he didn't want to go!





Collin joined scouting this year, and actually I am his Den (assistant) mother! Being a "Wolf " (that is the rank) has been great for Collin. Especially socially and even more so because it's a very small den, and all of our boys, thought it wasn't planned that way have some sort of Learning Disabilities. It has helped Collin not feel like the 'dumb' one. They are all on the same playing field, so to speak!

   That being said the NLD (non verbal Learning Disability) has become more and more obvious, especially when Collin is among peers of "typically developing" kids. I wouldn't be surprised if he does get the Aspergers diagnosis. I feel like I see the "social awkwardness" more and more. I'm not gonna lie and say that it's "easy". Some times I get so frustrated watching him act like what others would perceive as acting like a fool. Some times it's really hard to remember that it's him. Its part of it all. He has also become a little more fresh and defiant. I know some of it is his age, but things like refusing to make eye contact with us when we are talking to him about behavior, or just not seeming to understand why he is in trouble. It's like he doesn't get that HIS actions have consequences. But these are all things to talk about with the Developmental doctor in Boston...not gonna lie I haven't made a phone call to her yet to make an apt. Our doctor there Dr. Davis whom we LOVE has left, so I have had a hard time with wanting to switch him...


  What else is "new".......OH Collin got new glasses. Well sort of. He got the same frames but a slightly stronger lens. To which he immediatly said "WOW I can see so much better".  Our eye doc said that so far he see's NO noduals in Collin's eyes which I great because it's something we have to worry about with the NF1.

So that's it..nothing to exciting...but like I said that is good!