Tick, Tick BOOM!

Over the last few weeks, mostly in the evenings we have noticed what I can only describe as a "tick" with Collin. It happens when he is watching TV, or reading with one of us, or on the computer playing. But MOSTLY before bed when we are snuggling and watching cartoons.

    Collin "almost" looks like he has the hiccups. It's that up and down jerky/bouncy motion that you get in your upper body when your hiccups are bad...he does that. He will do that for a few seconds then pause and resume again in 15-30 seconds. After we had noticed it for a week we asked his teacher if she had noticed it in school. I was trying to pinpoint if he only does it while he was tired or if he does it during the day too. The teacher said she hadn't noticed but would keep an eye out for it. A few weeks later she confirmed that they have seen it a few times when he is at his desk. I have yet to ask his special needs teacher since I don't see her often, but I will get the chance tomorrow when we have the follow up IEP meeting. We wanted to meet again given the report from Dr. Davis had come in (like I talked about in the last entry).

   I did get a tad nervous and give Dr. Davis a call. I got her voice-mail but she was amazing enough to call back with in two hours. She did tell me that 20% of kids will have a tick at one point or another and they are usually brought on by alot of stress or major changes in a child's life. Neither of which are the case in Collin. She said as long as it isn't accompanied by a "vocal" tick not to stress over it to much. But defiantly to follow up with Collin's Pedi and to bring it up at the Neurology apt we have in late July. She said kids with NF will some times have ticks and "sometimes" the onset of those ticks are because a tumor in the brain. So, there you have it. I honestly feel like I could pop. How much more could happen....Ok fate I am NOT tempting you to show me what more could happen.

  So that is the "newest" thing with Collin...so lets add it all up

NF + an NLD + a VPD + EPD + possible ADD + a neurological tick = my precious, sweet, amazingly kind and loving little boy COLLIN!!!!