A visit with the Pedi

Hi everyone. So last month I told you about Collin's IEP addendum meeting and how we (the IEP team, Dr.Davis and myself) thought that we should follow up with Collin's Pedi Dr. Osterov. Well there was a bit of delay in that because I had to wait for the Progress notes from the OT. Well they finally came in on Tuesday which was Collin's last day of 1st grade!!!!! I called our Pediatrician and got an appointment for this past Friday (June 22nd). The apt went well. Collin weighed in at 51 lbs and is 3feet 10 inches. That makes him 45% for height and 25th% for weight. Dr. Osterov did a quick Neuro eval and all and all he looks good. Gross motor strength was average, and there is some definate deficit in fine motor and a loss of strength there, but we knew that...that and the "tick" was our reason for the visit. I should clarify that we didn't make this apt to gain anything from it, just to make sure it was documented in his charts and that Dr. Osterov was in the loop.

   Anyway, we discussed the loss of strenght and the tick. Dr. Osterov shared with me that kids that have ADD/ADHD some times have ticks..actually it's one of the side effects of some stimulants that are given to kids for add/adhd. Although Collin is NOT on anything for it...as right now he is just considered borderline ADD that this is what could be causing the tick. Dr. Osterov said that the part of the brain that controls impulsive and things like ADD/ADHD and the part of the brain that most "ticks" are in are right next to each other and this is why they go hand in hand..the brain is making them BOTH fire off.

   She did say that she finally see what I mean by he is strong yet has low muscle tone...and was able to see both the "tick" and the turning of the left leg herself. She of course wants us to continue with the plan of extended school year and keep our neurology apt. Which is at the end of July. Dr. Osterov said that given that Collin's weakness is symmetrical and that he hasn't had issues with severe headaches that she has her doubts that any of these symptoms (the tick and loss of muscle tone) are from a fibroid (tumor) on the brain. She did say she wouldn't rule out the spine, but we will cross that bridge with Neuro.

So that was that!

  Tuesday we have an apt with Dr. Demmer who is the genetics Dr. This is our first meeting with a genetics specialist, so I am looking forwards to that. I assume it will require blood work and family history..but am looking forward to getting our kind of NF classified. It won't only help Collin, but will give some answers to me, and my dad, as we will all have the "same kind". So look for our post on our apt in the coming week.


Oh and I wanted to take a little brag moment. Like I mentioned Collin is officially a 2nd grader. This was a TOUGH year for him, but he worked so hard. Last semester on his report card he had mostly 2's and 1's. This one he got Mostly 3's and a few 4's. We are so proud of how hard he worked. You best bet those grades didn't come easy for him...and although he still has a long way to go the leaps and bounds he made this year make me so happy.

My handsome man on his last day as a 1st grader!!!!!